Monday, 21 May 2012

One of those days

"Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen" Ephesians 3:20-21
It has been one of those strange days when Faith is well throughout the day but we have spent so much time cleaning up vomit. What causes this? I guess it is the Arnold Chiari ii but it is always in the back of my mind, is the shunt working ok, has Faith got a UTI after weeks and weeks of being clear or is it just one of those days where she vomits a lot. There are days like that but not so often now. Every day has some vomiting in it and we have adapted to it but a day like today, I start to wonder.

We went to a church gathering and we all shared lunch together and it was really nice catching up with friends but after lunch when Faith's tube feed was finished she had a massive vomit. I tried so hard to distract her and get her focus on something else. One of those vomits I struggle to catch and it is spread everywhere. It was a rather hard situation as it hasn't really happened in such a large group of our friends before. They were so good and trying to help anyway they could. I guess they got an insight into what our life holds from day to day. Poor little Faith was trying so hard but after being sick, the environment was too loud and too many people for her. She just snuggled into my arms. We decided at that point we should just head home and give Faith a rest. At least we tried. So after coming home and Faith having a short rest she had another vomit which is 4 in a day and that is quite a lot for Faith these days.

In between we had a lovely time sitting outside watching the world go by. Faith sang at her loudest voice and laughed as I brought the washing in. Anything and everything was funny to her. I loved hearing her voice. She is getting stronger and that little double chin wrinkles when she laughs and she gives us a big toothy grin. There is nothing like a little girl singing and chatting so very loud and sounding happy. It is amazing what Faith just takes as part of her day, nothing seems to get in her way, she still keeps trying and trying. So from saying all that, it just must be one of those days.

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